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The Uveitis Patient Passport: A Self-Care Tool.
葡萄膜炎患者护照: 自我护理工具。
- 影响因子:1.52
- DOI:10.1080/09273948.2019.1569240
- 作者列表:"Bailie HN","Liu X","Bruynseels A","Denniston AK","Shah P","Sii F
- 发表时间:2020-04-02
Abstract
:Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experience.Methods: The UPP, created in consultation with patients and the multidisciplinary team, was evaluated using a patient questionnaire and mixed quantitative and qualitative methodology.Results: Key themes emerged, with the passport used by participants as a self-care resource and an aid for cross-specialty communication. Patient involvement in evaluation identified key areas for passport development in line with patient needs. These included improving clinician engagement and future transference into a smartphone application.Conclusion: The introduction of the first UPP was a success, especially as a self-care tool for supporting patients in managing their uveitis with the potential to improve patient outcomes.
摘要
目的: 患者自我护理工具可以改善慢性病患者的预后。在葡萄膜炎中,对创新型葡萄膜炎患者护照 (UPP) 的需求未得到满足。本研究旨在通过患者体验评估护照引入三级葡萄膜炎服务的成功与否。方法: 在与患者和多学科团队协商后创建的UPP,使用患者问卷和混合定量和定性方法进行评估。结果: 关键主题出现,与参与者使用的护照作为自我护理资源和跨专业交流的帮助。患者参与评估确定了符合患者需求的护照开发关键领域。这些包括提高临床医生的参与度和未来转移到智能手机应用程序中。结论: 首次UPP的引入是成功的,特别是作为支持患者管理葡萄膜炎的自我护理工具,有可能改善患者的预后。
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METHODS::Emotion regulation (ER) strategies are often categorized as universally adaptive or maladaptive. However, it has recently been proposed that this view is overly simplistic: instead, adaptive ER involves applying strategies variably to meet contextual demands. Using data from four experience-sampling studies (Ns = 70, 95, 200, and 179), we tested the relationship between ER variability and negative affect (NA) in everyday life. The constantly changing demands of daily life provide a more ecologically valid context in which to test the role of variability. We calculated 2 global indicators of variability: within-strategy variability (of particular strategies across time) and between-strategy variability (across strategies at one time-point). Associations between within-strategy variability and NA were inconsistent. In contrast, when controlling for mean strategy endorsement, between-strategy variability was associated with reduced NA across both individuals and measurement occasions. This is the first evidence that variably choosing between different strategies within a situation may be adaptive in daily life. (PsycInfo Database Record (c) 2020 APA, all rights reserved).
METHODS::Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experience.Methods: The UPP, created in consultation with patients and the multidisciplinary team, was evaluated using a patient questionnaire and mixed quantitative and qualitative methodology.Results: Key themes emerged, with the passport used by participants as a self-care resource and an aid for cross-specialty communication. Patient involvement in evaluation identified key areas for passport development in line with patient needs. These included improving clinician engagement and future transference into a smartphone application.Conclusion: The introduction of the first UPP was a success, especially as a self-care tool for supporting patients in managing their uveitis with the potential to improve patient outcomes.
METHODS::A body of research documented that the study of mental health of the oldest individuals may contribute to understand the psychological characteristics of longevity. This study had two related aims. First, to fully characterize the psychological health of Sardinian elders in the very late adult span. Second, to determine the psychological health of long-lived individuals (i.e., centenarians) from this population. Three gender-matched age groups (octogenarian, nonagenarian, centenarian) of cognitively healthy, community dwelling adults were recruited in Sardinia, an Italian island characterized by higher levels of longevity. Comparisons of total and sub-scale levels of psychological well-being and depressive symptomatology were made while controlling for social desirability. There were few differences in any index of psychological health between the groups; only a decrease in the coping strategies sub-scale of psychological well-being was observed between the centenarians and the octogenarians. Social desirability was differentially associated with specific dimensions of depressive symptoms and psychological well-being. These findings highlight that there is minimal age-related decline in the psychological health of a longevous population, even among its very oldest members. The present outcomes suggest that older Sardinians represent an advantageous population for the investigation of the psychological markers of longevity, since they demonstrate positive adaptation to the challenges (e.g., changes related to their social network) of very late adulthood.
日常生活活动指一个人为了满足日常生活的需要每天所进行的必要活动和功能性移动。