Assessments used to measure participation in life activities in individuals with cancer: a scoping review.

用于衡量癌症个体参与生活活动的评估: 范围审查。

  • 影响因子:2.83
  • DOI:10.1007/s00520-020-05441-w
  • 作者列表:"L'Hotta AJ","Varughese TE","Lyons KD","Simon L","King AA
  • 发表时间:2020-08-01

PURPOSE:Individuals with cancer are at high risk for restricted participation in meaningful life activities such as work, school, and social activities. Evaluating participation in life activities is identified as a critical component of rehabilitation referral and triage systems. This scoping review investigates what assessments are used to measure participation in life activities in individuals with cancer. METHODS:Six databases were systematically searched using keywords and controlled vocabulary through February 2020. Eligible studies used the term participation in the context of life situations and had an assessment with at least 5 participation-specific questions. RESULTS:A total of 4604 unique articles were identified and screened for eligibility. Thirty-two studies were included; 20 unique assessments of participation were identified. Assessments were developed with the primary purpose of measuring participation (n = 8); global or physical function (n = 9); community integration (n = 1); social activity (n = 1); or occupational gaps (n = 1). Most assessments (12/20) were not developed with the purpose of measuring participation and only 4 assessments measured key components of participation other than frequency. CONCLUSION:Measuring participation in life activities is a developing area in oncology research. Most studies do not accurately or comprehensively measure this construct. The heterogeneity in assessments used indicates no clear consensus on a gold-standard participation measure for use among cancer survivors. Comprehensively measuring participation will help identify individuals in need of rehabilitation services and is an essential first step to inform the development of targeted interventions to enhance participation.


目的: 患有癌症的个体处于限制参与有意义的生活活动 (例如工作、学校和社会活动) 的高风险中。评估参与生活活动被确定为康复转诊和分流系统的一个关键组成部分。本范围审查调查了哪些评估用于衡量癌症患者参与生活活动的情况。 方法: 在2020年2月使用关键词和控制词汇对6个数据库进行系统检索。符合条件的研究在生活情境中使用 “参与” 一词,并进行了至少5个参与特定问题的评估。 结果: 共鉴定并筛选了4604篇独特的文章。纳入了32项研究; 确定了20项独特的参与评估。评估的主要目的是测量参与 (n   =   8); 全球或身体功能 (n   =   9); 社区整合 (n   =   1); 社会活动 (n   =   1); 或职业差距 (n   =   1)。大多数评估 (12/20) 不是为了衡量参与,只有4项评估衡量了参与频率以外的关键组成部分。 结论: 测量参与生命活动是肿瘤学研究的一个发展领域。大多数研究没有准确或全面地测量这种结构。使用的评估异质性表明,对于癌症幸存者使用的黄金标准参与措施没有明确的共识。全面衡量参与将有助于确定需要康复服务的个人,这是为制定有针对性的干预措施以加强参与提供信息的重要第一步。



作者列表:["Blanke ES","Brose A","Kalokerinos EK","Erbas Y","Riediger M","Kuppens P"]

METHODS::Emotion regulation (ER) strategies are often categorized as universally adaptive or maladaptive. However, it has recently been proposed that this view is overly simplistic: instead, adaptive ER involves applying strategies variably to meet contextual demands. Using data from four experience-sampling studies (Ns = 70, 95, 200, and 179), we tested the relationship between ER variability and negative affect (NA) in everyday life. The constantly changing demands of daily life provide a more ecologically valid context in which to test the role of variability. We calculated 2 global indicators of variability: within-strategy variability (of particular strategies across time) and between-strategy variability (across strategies at one time-point). Associations between within-strategy variability and NA were inconsistent. In contrast, when controlling for mean strategy endorsement, between-strategy variability was associated with reduced NA across both individuals and measurement occasions. This is the first evidence that variably choosing between different strategies within a situation may be adaptive in daily life. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

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作者列表:["Bailie HN","Liu X","Bruynseels A","Denniston AK","Shah P","Sii F"]

METHODS::Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experience.Methods: The UPP, created in consultation with patients and the multidisciplinary team, was evaluated using a patient questionnaire and mixed quantitative and qualitative methodology.Results: Key themes emerged, with the passport used by participants as a self-care resource and an aid for cross-specialty communication. Patient involvement in evaluation identified key areas for passport development in line with patient needs. These included improving clinician engagement and future transference into a smartphone application.Conclusion: The introduction of the first UPP was a success, especially as a self-care tool for supporting patients in managing their uveitis with the potential to improve patient outcomes.

作者列表:["Fastame MC","Penna MP","Hitchcott PK"]

METHODS::A body of research documented that the study of mental health of the oldest individuals may contribute to understand the psychological characteristics of longevity. This study had two related aims. First, to fully characterize the psychological health of Sardinian elders in the very late adult span. Second, to determine the psychological health of long-lived individuals (i.e., centenarians) from this population. Three gender-matched age groups (octogenarian, nonagenarian, centenarian) of cognitively healthy, community dwelling adults were recruited in Sardinia, an Italian island characterized by higher levels of longevity. Comparisons of total and sub-scale levels of psychological well-being and depressive symptomatology were made while controlling for social desirability. There were few differences in any index of psychological health between the groups; only a decrease in the coping strategies sub-scale of psychological well-being was observed between the centenarians and the octogenarians. Social desirability was differentially associated with specific dimensions of depressive symptoms and psychological well-being. These findings highlight that there is minimal age-related decline in the psychological health of a longevous population, even among its very oldest members. The present outcomes suggest that older Sardinians represent an advantageous population for the investigation of the psychological markers of longevity, since they demonstrate positive adaptation to the challenges (e.g., changes related to their social network) of very late adulthood.

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