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Clinical communication preferences in cystic fibrosis and strategies to optimize care.

囊性纤维化的临床沟通偏好和优化护理的策略。

  • 影响因子:2.38
  • DOI:10.1002/ppul.24655
  • 作者列表:"Cooley L","Hudson J","Potter E","Raymond KF","George C","Georgiopoulos AM
  • 发表时间:2020-01-24
Abstract

BACKGROUND:The importance of optimizing communication between clinicians and individuals and families living with cystic fibrosis (CF) about daily care, adherence, and related psychosocial concerns is well documented. The purpose of this study was to gain an understanding of interpersonal communication experiences and preferences among individuals and families living with CF as they engage with the clinical team. The study also aimed to reveal opportunities for enhancing future interpersonal communication practices. METHODS:Five U.S. CF care centers participated in the following activities: (a) On-site observation of clinic interactions during outpatient visits; (b) On-site 1:1 interviews with individuals living with CF, their family members, and CF clinicians; (d) Focus groups conducted in person with CF care team members; (d) Focus groups conducted virtually with adults and family members with CF. Content analysis of transcripts and constant comparative methods were used to identify emergent themes. RESULTS:Four themes related to participants' needs and preferences for clinic interactions emerged during analysis: (a) eliciting psychosocial concerns, (b) addressing childhood development and transitions, (c) negotiating agendas and sharing decisions, and (d) educating to enhance CF conversations. CONCLUSION:CF clinicians and individuals and families living with CF expressed the need for resources and training to engage in better conversations with each other. Participants identified areas of high priority, including working together around social, psychological, and economic challenges, preparation for transition to adulthood, and sustaining daily care. Findings point to the value of developing advanced communication skills that foster trust-building, negotiating agendas, active listening, and collaborative goal-setting.

摘要

背景: 优化临床医生与患有囊性纤维化 (CF) 的个人和家庭之间关于日常护理、依从性和相关心理社会问题的沟通的重要性已经得到很好的记录。本研究的目的是了解 CF 生活的个人和家庭在与临床团队合作时的人际交流经历和偏好。该研究还旨在揭示增强未来人际交往实践的机会。 方法: 5 个美国 CF care 中心参加了以下活动 :( a) 门诊就诊时门诊互动的现场观察; (b) 1:1 现场采访 CF 患者、其家庭成员和 CF 临床医生; (d) 与 CF 护理团队成员亲自进行的焦点小组; (d)焦点小组与 CF 成人和家庭成员进行了虚拟。采用转录本的内容分析和恒定比较方法确定突现主题。 结果: 在分析过程中出现了与参与者对诊所互动的需求和偏好相关的四个主题 :( a) 引发社会心理问题,(b) 解决儿童发展和过渡问题,(c) 谈判议程和分享决定,以及 (d) 教育以加强 CF 对话。 结论: CF 临床医生以及患有 CF 的个人和家庭表示需要资源和培训来更好地相互对话。与会者确定了高度优先的领域,包括围绕社会、心理和经济挑战共同努力,为过渡到成年做准备,并维持日常护理。研究结果指出了发展高级沟通技能的价值,这些技能可以促进建立信任、谈判议程、积极倾听和协作目标设定。

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影响因子:4.40
发表时间:2020-01-01
DOI:10.1007/s00262-019-02431-8
作者列表:["Shibaki, Ryota","Murakami, Shuji","Matsumoto, Yuji","Yoshida, Tatsuya","Goto, Yasushi","Kanda, Shintaro","Horinouchi, Hidehito","Fujiwara, Yutaka","Yamamoto, Nobuyuki","Kusumoto, Masahiko","Yamamoto, Noboru","Ohe, Yuichiro"]

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影响因子:4.04
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来源期刊:New biotechnology
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作者列表:["Sousa SA","Soares-Castro P","Seixas AMM","Feliciano JR","Balugas B","Barreto C","Pereira L","Santos PM","Leitão JH"]

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